A few years ago when I was working in Boston producing events and fundraisers for groups I was fortunate enough to meet Sam Berns. It was right before he spoke at the Progeria fundraiser in Cambridge, MA in 2010. He was very well spoken and inspirational and I wish I had gotten to know him even better. I heard about his passing last month on WEEI in Boston and I just found the link to the HBO documentary that tells his story. I recommend it very much.